If anyone saw my Twitter or Facebook feed, and saw my status
about me being pissed off with FA - Friedreich's Ataxia
Here’s why
So I had a Night from Hell
My day was fantastic, went to the cinema with my friends and
saw The Inbetweeners 2 (Which I really enjoyed and found so funny, much better
than the first film) and then we went and had some lunch, and then re-hit the
cinema for film number 2 Guardians of the Galaxy which is ace I loved it... it
is so much fun.
Then we came home, that’s when the fun stopped and thing
went a little south.
So the first one kind off my fault, I was dying for a pee
but I kept putting it off and holding it which is a really bad thing for anyone
to do, even worse when you have FA. So when I went to the toilet I wasn’t quick
enough, and yes 26 year old me pissed my pants lucky I was at home and not out
and I grabbed my pee bottle, and got some in there. After some time spent doing
clean up on aisle 7 I was good to go.
A few hours later I went back to use toilet, and during my
transfer my right knee decided to lock up so I try to force myself onto the
toilet. Big mistake that was, I end up braking the toilet seat and flying off
the toilet. After getting my mum and brother to help me up off the floor, I went
to my room did a status about FA and then went to sleep.
Broken toilet seats is a thing FA’ers are use too, this wasn’t
my first and won’t be my last I bet. Today I am feeling down about FA, and the
fact that this tard can’t sit on a toilet without breaking it.
There we go, that was my night from hell I know deep down
things will get better... thanks to the Amazing soundtrack from the Guardians
of the Galaxy
I’ve got this song stuck in my head https://www.youtube.com/watch?v=bmDakhg45rk
which is good because it’s
kind of helping me feel better.
My little brother had FA and my dad used to buy toilet seats in bulk! Sadly he passed away at the end of June from heart failure. I hope you can enjoy even the bad days because at least youre still here to break stuff and make messes... I would give anything to clean up one more spill my brother made.
ReplyDeleteSorry to hear he passed Tina, but thank you for your comment. I never think about it from other people's point of view but i bet they would be like you if i wasn't here
DeleteThanks for sharing your journey Justin. My brother had a very difficult time accepting the hand he was dealt (I dont blame him I would have too). But I hope people like you will help others out there will help feel a little better with what is happening and know that they are not alone. My 9 year old cousin was diagnosed with FA a few months before my brother passed and I hope people like you will help him better deal with his future.
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