To think this day started off in the worst possible way, I fell
out of bed and crushed my leg under my fat ass.
And now we rewind
A few weeks back I and my friend (Dave) got talking about
festivals, and we both decided on Download, however I checked online and the
weekend disabled camping tickets had SOLD OUT.
I put myself on the cancellation list, and every night I was saying a
pray to the Rock Gods up stairs.
Yesterday that pray got answered as a ticket became
available, and today I paid for that ticket.
I very much so feel like Charlie Bucket in Charlie and the
Chocolate Factory, I have a golden ticket. (I know he won it and I paid for it,
but still I’m Excited)
I have not been to Download since 2010, that’s 4 years
(Because of other things, and the 2 ops I had done) But this year I am making
my way back, I'm on the way to the promised land.
Here’s the Line Up
Now I know some of it isn’t great, but it does have some bands that I am dying to see. Like Rob Zombie, Black Label Society, Twisted Sister, Volbeat and Steel Panther again and a few more. \m/
Also
I did a blog interview with Clare
Nonhebel
Clare Nonhebel is a Christian who writes for believers and non-believers alike, tackling serious topics with a lightness of touch.
Clare is a fantastic lady and even
though I have not met her, one day (I hope soon) I will.
Then this got sent to me to make this day even more Amazing
I received the feedback from my Tuesday talk
Take a look
What did you find useful about the
session?
·
Finding out
about this rare condition and how it affects him and his family and what it
entails.
·
Patient
insight into the condition
·
Justin and
his mother were very honest and open and gave a lot of information
·
Great to hear
first-hand views and experiences
·
I found it
amazing to hear about living with a
condition first-hand
·
I loved that
there was no PowerPoint presentation and that Justin truly spoke from the heart
·
This session
was absolutely invaluable! It was amazing to hear from a young person living
with the condition rather than just a PowerPoint
·
Loved hearing
about someone’s own experiences first-hand. Very useful to find out from
patients’ perspectives on their own treatment and how it can be improved
·
To understand
how not to give diagnosis to patients and families about conditions.
To find out a bit more about Friedrich’s Ataxia and how the family coped with
the diagnosis
·
Very
interesting; complete eye opener
·
Real life
situation, feelings, raw emotion
·
Interactive
Q&A session
·
The session
was very interesting as it enabled us to see another point of view and gain
insight to the experiences of a parent and child. Also this is a condition
which we might not have come across so interesting to gain understanding of
this
·
Emotions felt
by patient with FA; how he deals with his daily life
·
Learning
about FA and how it affects the family’s daily life (2)
·
Steps through
his diagnosis
·
Carer’s point
of view from his mum
·
Sharing their
life experience; being personal
·
Hearing about
a condition from a person who currently knows what it is like, living with
the condition, rather than just being taught about it. It helped to realise
and understand the condition from that person’s perspective
·
Getting a
‘reality’ view from the person/carer perspective of living with a life
long/complex condition
·
Learning
about positives/negatives/difficulties experienced
·
Gaining a
more in-depth understanding
·
Receiving
information directly from Justin and his mother; very informative and
interesting
·
Loved
learning about the condition from Justin himself, rather than a PowerPoint;
hearing from him and his mum was very interesting
·
Hearing the
journey of a real life patient; their feelings and challenges
|
What could have
been done differently?
·
Nothing; it was lovely to hear from someone with the
condition rather than PowerPoint from someone who doesn’t know much
·
Set out the room differently; felt too formal; maybe a
circular set up
·
Carpet was hard for Justin in his wheelchair
·
More explanation on how nurses could have improved the
hospital experience
·
More detail about care in hospital and from nurses;
also improvements for nurses and professionals to make
·
Nothing (2)
·
Left blank (11)
|
Any other comments
·
Very good session
·
This was brilliant and inspiring; makes me think about
how to treat young people in the future
·
You are both doing an excellent job; keep smiling
Justin!
·
Very interesting session :) (2)
·
Interesting to learn about how the doctors and health
staff dealt with the family and diagnosis
·
Recommend for other years (2)
·
Extremely beneficial; recommend for other years
·
We need more sessions like this!!!
·
We would definitely benefit from more sessions like
this!
·
It was brilliant and very valuable; both personally and
relative to the course
·
Brilliant session; very useful and thank you for coming
to talk to us!
·
Thank you for this opportunity (3)
·
Very interesting, I will look at Justin’s blog
·
Left blank (4)
|
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