Hello i am Justin Scrimaglia and I have Friedreich's Ataxia, Welcome to my blog of all things Justin and Friedreich's Ataxia. Helping to raise awareness for FA My story in my own words… http://jdscrim.blogspot.co.uk/2013/05/my-story.html What is Friedreich's ataxia? http://jdscrim.blogspot.co.uk/2013/02/what-is-friedreichs-ataxia.html
Tuesday, 26 November 2013
Hospital today was Good but also a Bloody Joke.
On the move again today for Hospital
On the move again today. Back to Southampton this time for Hospital, to see the spine doctor. I had an appointment for 21/1/2014 and it got reschedule to today Tuessay the 26th of November at 3 o'clock.
My mum seems to think that they have pushed it forward because of the scan i had on my stomach and I'm finding out I have an enlarged spleen.
Maybe it is, i don't no all I am hoping for is that it is good news and my spine hasnt got any worse.
Good or bad news i will do a post later tonight.
Sunday, 24 November 2013
30 Seconds To Mars and a Nightmare Journey
Assistance at station for alighting,
Wheelchair user requiring ramps at destination station,
wheelchair accessible taxi required to BMH
Friday, 22 November 2013
London Baby
Here we go.
My first blog out on the road, well train. We are off to London baby. :-) i'm with my best friend Chirs, and we are going to see 30 seconds to mars 2night at the O2 arena. So some may say why 30 seconds to mars?? when you like other heavier bands, well I like what I like and I will admit that 30 seconds to mars are a bit of a guilty pleasure. (We all have them)
I have been a good disabled person and pre-booked my ramps so i can get on and off the train. I only down part of to days adventure is, on the way back we have to get a taxi back from Southampton to Bournemouth. This is because they are doing work to rail lines. And they are lying buses on from Southampton to Bournemouth but because i am no longer able to walk i can't get on it. So taxi back it is, (South West Trains) are paying for the taxi not me. This isn't the first time I've had to do it, which it kinda sucks but hey ho it beats getting stuck at a train station in the cold and it's a way home.
Just throw in a plane and a boat and we will pretty much cover all forms of transport today haha. Lets go have some fun in London town. :-)