Sharing Is Caring

Yesterday I saw some friends sharing a video on Facebook so I watched it and its really sweet,

It’s of 19 year old Tasha who was diagnosed with Friedreichs Ataxia on the 4th February 2014. She is ding a Bucket List of 50 things that she wants to achieve before she die’s/FA kicks in, now I think this is pretty cool and fair play to her...

 Watch the video

But Tasha and any other FA out there reading this here’s my message to you Never Give Up, Don't Back Down and Keep On Trucking. Now I know everybody with FA is different, but just because you have FA doesn’t mean life is over... there is life with FA. I’ve been living with FA for over 12 years now and I pretty much still do all the same things I used to do, something’s I do them a little differently than before, I’m a big believer in where there's a will there's a way.

Just for the record I’m not trying to tell anyone how to live their live or be like me, I’m trying to say that you can still enjoy life even with FA. And let’s face it Yes FA dose suck I wouldn't wish it on anyone (and Yes even to this very day I still get days where I struggle with it, I’m only human) but I find away to battle and keep on going. Kind of going of track a bit now, I don’t know not even sure if this blog helps anyone, but as I said before Never Give Up, Don't Back Down and Keep On Trucking... this live still has some beautiful things, even for us folks with disabilities.

To follow her journey go here: 

https://www.facebook.com/pages/Tashas-Bucketlist-Fight-Against-FA/200871756789241?sk=timeline 

For more information on Freidreichs Ataxia go here: 

http://www.ataxia.org.uk/ 

An Evening With Noel Fielding

 

Last night an evening with Noel Fielding was all the fun and we had ICE CREAM  

(It wasn’t free; we had to pay for the ice cream) 

Noel Fielding is such a funny guy 

                                                (This pic is Sergeant Raymond Boombox)

I laughed so much last night, the best part of the night was when Noel came out as Sergeant Raymond Boombox, and started walking among the audience talking to a few people.

My friend Chris is a cool guy and he has a very handsome beard (think of a chubby, more hairy Jeremy McKinnon from A Day To Remember and that’s Chris)

Of course when Noel headed over our way he was going to stop, and that’s what he did and Chris turned into a giggling school girl because Noel touched him he got a little star struck.

Noel Fielding’s tour has to be the strangest comedy show going at the moment, but it’s safe to say we  and everyone at the BIC in Bournemouth last night had good times. 

Here's a review i found, not of the Bournemouth show but still enjoy

http://www.chortle.co.uk/gigreview/2014/10/30/21206/an_evening_with_noel_fielding 

And talking of strange here's some selfies of us

                                                 (I love the grumpy old man behind us haha)

Road Trip Talk

So last week on the drive to our gig, me and my friend Chris got talking on the subject of me on nights out. I should add I do gigs with Chris but not nights out as he works weekends, that’s how we ended up on the topic. 

Anyway back to the story 

I was telling him how I pretty much become like a Rockstar when I’m out because I am usually the only one in a wheelchair, so of course everybody wants to talk to the guy in wheelchair.

Chris was like do you ever say anything funny? to them when they ask.

(I'd just like to add here that all this is 100% true, I'm not perfect and from time to time some pretty dumb stuff comes out of my mouth... don't believe me just ask any of my friends & family. As I'm sure that you know by now I just like sharing, so that's why I am writing this...)

I said this one time this girl came up to me and said “so why are you in a wheelchair” before I tell you what I said, I’m not sure why I said it, maybe I thought it sounded funny in my own head. 

Here’s what I said

“I don’t really need it; I just like to have somewhere to sit when I come out”

It cracked Chris up, but the girl that night I swear to god her mouth hit the floor and she had this look in her eyes that said, you lazy peace of shit and I’m pretty sure she wanted to throw her drink over me.

I could see it was going south in a hurry, so I quickly had to tell her I was joking and I told her the real reason to why I am in a wheelchair and after I told her, she went you’re such an inspiration and you have a beautiful smile.

(Here's my story http://jdscrim.blogspot.co.uk/2013/05/my-story.html check it out)

I and Chris got talking in the car, and agreed that I should start telling people that they tried to give me adamantium claws like Wolverine but surgery went wrong. It’s safe to say we got our nerd on for a bit haha..

Anyway over the few days, I have been thinking/wondering what do my fellow wheelchair users of this world say? Any funny stories? Or do you just tell them to mind their own business. 

If you want to, leave a comment or hit me up on the Twitter https://twitter.com/JDScrimaglia 

 or Facebook https://www.facebook.com/justin.scrimaglia

I'd love to hear what my fellow wheelchair users say. 

Talking of fellow wheelchair users, have you seen this? if not click and enjoy 

https://www.youtube.com/watch?v=mIQfw6h0c8E

3days of Fun

I have had 3 pretty great and fun days :-)

All started on Tuesday went to the cinema with my friend Dave and his brother; we did a cheeky KFC stop and then went to see Interstellar. 

 It's a beautiful journey into the unknown, long winded and a little emotional too but I loved it and yes I cried a little half why trough and the end and it’s very smartly done in how it’s shot and written. I only say it’s long winded because we saw it at 8:30pm and didn’t get out the cinema till like 11:30/45pm something like that. 

“Spoiler Alert” 

There is this scene in the film where Michael Caine is on his death bed, I whispered to Dave “I don’t like it when Michael Caine die’s and his reply whispering and in a cockney voice goes “you were only suppose to blow the fucking doors off” oh man that tickled me, I had to hold my laughter in it broke me I would have laughed the place down. 

Wednesday was the A Day To Remember gig 

And yes it will be a gig to remember for bad reasons, my gig buddy Chris picked me up and we headed to Southampton to pick up 2 of his friends who were also coming to the gig. After we picked them up we headed for Portsmouth Guildhall, as I and Chris were entering the venue this guy outside (who I believe was very drunk) fell over and face planted right in front of us, and to be honest he looked fucked. 

We arrived a little late as traffic was a nightmare, so we caught the end of the first band, now I have forgot their name but what I saw they were pretty cool. Next up were Lower Than Atlantis I found them okay, they had a few good songs and I thought they good support for ADTR they done their job of warming up the crowd. 

Then ADTR hit the stage and it was 30mins of all the Fun but came to a halt and became bad times really quick, I was down on the edge of dance in with the crowd having a good time and watching the band, I didn’t see the guy/fall but I did see all commotion from the balcony after.

Let’s just say it was not a nice experience to be part of, after that it was gig over everybody out.

http://www.portsmouth.co.uk/news/local/portsmouth-gig-halted-after-man-falls-from-balcony-1-6414187 

http://www.portsmouth.co.uk/news/local/fan-dived-from-portsmouth-guildhall-balcony-during-a-day-to-remember-gig-1-6414786 

So I Chris, Vince and Molly went to a pub for a quick drink and to hang out some more before we headed back. This pub went in to did not have a disabled toilet and I needed a pee, Vince said pee on the floor but I’m not an animal. I had my pee bottle with me but it was in my bag back in the car, so before we left the car park in Portsmouth there probably id footage of me whipping my dick out and taking a long needed pee by a skip, that’s right readers I’m classy. 

Last night Thursday

Fun evening out, food & beer at Mexigo with my little sister Danielle and her boyfriend Martin, and popped into the Anvil for a quick drink with the gang was good times. :-)

Here’s a little message to the people who have made the last few days All the Fun...