Welcome to my Life

The other day I heard the song by Simple Plan - Welcome to my Life

 in those first few early yes of dealing with FA this song said pretty much how I was feeling. I continued to feel this way for a few years and then one day it all changed.

(To save myself some time here is a link to my story it explains it all)

http://jdscrim.blogspot.co.uk/2013/05/my-story.html 

                                           (Look at me here... not very happy and i am pretty

                                              I may have been listening to Simple Plan)

It just takes Time 

My life has got a lot better from skydiving, gigs/festival to all the great work I’ve been doing with BU Carer & Service User Partnership thanks to them I got to do my first ever solo talk. 

http://jdscrim.blogspot.co.uk/2014/10/achievement-unlocked-first-ever-solo.html 

http://www.bournemouth.ac.uk/hsc/swcarerpg.html?utm_source=leaflet-pull-up&utm_medium=collateral&utm_campaign=csup 

Oh and I even play wheelchair rugby

Which I’ll be honest I stink at compared to my team mates, but I try. This past Sunday we had training and to be fair I probably played the best I ever have... I was doing some good blocking,: passing from the inbound and I even managed to catch the ball which led to my team scoring happy days so must be improving.

That is my key word for today “Try”

And that is going out to everybody, try something new, try something old just try...

2 things are probably going to happen, 1. You get a huge sense of gratification or 2. You realise it wasn’t for you and that’s okay because you still gave it a shot. 

I’ll be straight up and honest with you before the first wheelchair rugby tester session, I had all the questions going around in my head what if I am not good enough? Thanks to FA I have nothing to offer this game and so on so on. 

You know what I just thought screw it I’m just going to see what happens and I am very glad I gave wheelchair rugby a shot turns out I like it and I have meet bunch of wonderful people who I now class as family. 

Okay so I still am bad at a lot of it, but I just stick to what I am good at and that’s blocking but the important reason here is to Try because life is too short.

Whether you have FA like myself, wheelchair user or not, whatever your disability heck it doesn’t matter even if you are ably bodied, get out there and try. 

I guess what I am trying to say with Time and some Will you can turn your life from Dark to Light, little Star Wars reference there.

System of a Down Live = Off The Chain

So sorry I didn’t do a post yesterday I was too tired, anyway I am here now not long got in from wheelchair rugby training which on a scale of 1 to 10 wheelchair rugby training was a 11 = brutal i am going to be sore come tomorrow, still lots of Fun had.

Anyway on with the show Friday night System of a Down Wembley Arena

Was killer fucking amazing show

I and my best friend Chris caught the train up, which was choker so for 2 stops we had to wait by the doors and one stinky ass toilet where it smelled like someone had dropped their guts. 

Made it to Waterloo and no one meet us with a ramp to get me off the train even low I had told them where I was going from Bournemouth and I had booked the ramps, I think they just forgot.

I just went backwards and Chris grabbed the back of my chair and bob’s your uncle we did it, next we headed for the underground, and I remembered from before I rolled up to a underground person and asked him to radio through to see if the lift was working at Wembley Station, so after waiting around like lemons for 10-15mins we found out the lift was working and on we went. 

 When we got to Wembley Arena we hit up a T.G.I Friday’s as I was starvin marvin, we had food and then went and hit up starbucks and chilled until it was time to go in.

The gig was off the chain

So fucking good 

The only downfall was they no support band and System of a Down didn’t hit the stage till just before 9 so we were in there just killing time at least I was sat down in my wheelchair I felt bad for the people by the stage their legs must have been killing.

But when System of a Down hit the stage man it was systems go...

Setlist

•  
1. Wake Up the Souls - Part 1

1. Holy Mountains
2. Jet Pilot
3. Suite-Pee

(Incomplete)

4. Prison Song
5. U-Fig
6. Aerials
7. Soldier Side - Intro
8. B.Y.O.B.
9. I-E-A-I-A-I-O
10. Radio/Video
11. Bubbles
12. CUBErt
13. Hypnotize
14. Dreaming

(Incomplete, middle breakdown only)

15. Needles
16. Deer Dance
17. Wake Up the Souls - Part 2

17. P.L.U.C.K.
18. Sartarabad

([traditional] cover)

19. Psycho

(The Rolling Stones' Start Me… more )

20. Chop Suey!
21. Lonely Day
22. Question!
23. Bounce
24. Kill Rock 'n Roll
25. Marmalade
26. Lost in Hollywood
27. Spiders
28. Mr. Jack
29. Wake Up the Souls - Part 3

30. Science
31. Chic 'N' Stu
32. War?
33. Arto

(Daron + John jam while Serj… more )

34. Cigaro
35. Toxicity
36. Sugar                                                                                                                                                                                                                                                                                     The roof got blown off when System of a Down played Chop Suey everyone was on their feet apart from me and fellow wheelchair people, still having All the Fun
    The gig was super heavy and I had a blast, it was well worth waiting all those year to see them.
    
    
    
    
    
    
    Click here to find out why System of a Down are so special to me
    http://jdscrim.blogspot.co.uk/2015/04/yes-another-gig-day-in-london.html 
    
    
    Right i am off to relax and watch some more of Marvels Daredevil
    
    p.s i forgot to add this in after the gig when we were on the tube heading back to Waterloo and the tube was rammed with people from the gig, anyway  i lent forward and was playing with the front of my wheelchair and when i sat back up Chris goes what were you doing? and i reply like lightning and say playing with my nuts it was so quick for me and funny. This couple opposite us on the tube wanted to crack up laughing you could just see i on them. Chris and i done a high five just because it was such a funny moment and deserved it.

Yes! Another gig day in London

Bloging on the move today, off on an adventure with my best friend Chris.

Off on the train again to London tonight im seeing the System of a Down and i very excited like a fat kid with cake, for 2 reasons 1. I love their music and 2. System of a Down played a big part in my teenage years heck the album Toxicity was the first album i got stoned too yes that's right people I am no saint haha. The school i went to after i moved back to Bournemouth i became friends with the burnouts and the naughty kids and we use get stoned during our lunch break and listen to different albums going from anything from rock to hip hop.

I remember the first time I got stoned I came back from school and I eat 6 packets of crisps from multipack one after each other, my mum was like your stoned and I was like no I'm just hungry... My eyes weren't fooling anyone haha they were massive.

And never got the chance to see System of a Down before but tonight i get to, Yes! I'm doing the happy dance right now :-)

System of a Down will always hold a special place in my heart, I'll try to take some pictures and videos of the gig if i remember too oh it's going to be All the Fun if you were going to the gig tonight be safe and enjoy it, and to everyone else reading this it's Friday start of the weekend so what ever you get up to have fun stay safe, peace love and hugs.

Fingers crossed everything goes smooth, if it doesn't your sure be able to read about here on my blog. Haha

All aboard the train of Fun

Inside I'm Dancing

Last week I kept thinking of the film inside I’m dancing and I really wanted to watch it again but I couldn’t find it (I think I lent it to someone and never got it back)

Never mind I bought it again on DVD and watched it the other night.  

It’s a fantastic film

 

 When the kinetic Rory moves into his room in the Carrigmore Residential Home for the Disabled, his effect on the home is immediate. Most telling is his friendship with Michael, a young man with cerebral palsy and nearly unintelligible speech. Somehow, Rory understands Michael, and encourages him to experience life outside the confines of home.

There is a scene in the film where Rory has a run in with the police and as soon as the word wheelchair is let out, the look on the police officers face is priceless.

I know this by experience

Right story time

For this we need to go back to my 21^st Birthday, I had just had my party and myself, my sister and a few friends decide the night was still young and we were going to find night club.  After putting my sister and other friends in a taxi me and my other friend took my mobility scooters, see he would drive and would hang off the back in my wheelchair surfing the pavements.  

Just before we got to the night club we went past this gang of teenagers, and i mean they were looking for trouble as they were starting on all the people up in front of us and then as we got closer to them one of them started shouting at me going "what you looking at, do you want some" i replied with don't want nothing mate.

I don't know maybe he saw me as an easy target, he started chasing us up the pavement he then grabbed the back of my wheelchair and yanked it from underneath me of course i was still hanging on to the back of the scooter so i was being pulled in both directions. I have nowhere to go so i ended up face down on the pavement, next thing i know i get a knee to the face and then the teenager starts threatening me saying that he is going to stab me up.

Next a meat wagon pulls up and loads of police jump out and take the teenager to one side, a police officer comes up to me and asks if i'm okay and if i need a hand up i look at him and go yeah i'm fine but i don't know where my wheelchair is. I shit you not his mouth hit the pavement with a look like Ohhh shit, the teenager was trying to make out that we were friends. I had no idea who he was i didn't press any charges against him i just wanted to get on and enjoy my night, thinking back on it now i know that was the wrong choice but i like to look at it this way and think if it wasn't me that night it could've been someone else and it could of been a whole lot worse for them.

This film will always hold a special place in my heart, because the first time i watched it was a few years after i was diagnosed with FA (Friedreich's Ataxia) i wasn't yet a wheelchair user so gave me a little glimpse into the world of wheelchair users/disabled life which was soon to be my future.

I became a full time wheelchair user just after i turned 19 and i am now 27 and in my time i have definely done some inside i'm dancing just like the DVD case says "you'll laugh, you'll cry you'll see the world through different eyes" anyway i'll leave you with this,
If you have never seen this film, then i've got 2 words for you WATCH IT.

In some parts of the world it's called  inside i'm dancing other parts it's called
Rory O'Shea was here.

p.s
If you are religious then Happy Easter and if you are not then Happy chocolate egg day have a nice day :-) peace, love and hugs always