Hello i am Justin Scrimaglia and I have Friedreich's Ataxia,
Welcome to my blog of all things Justin
and Friedreich's Ataxia.
Helping to raise awareness for FA
My story in my own words… http://jdscrim.blogspot.co.uk/2013/05/my-story.html
What is Friedreich's ataxia?
http://jdscrim.blogspot.co.uk/2013/02/what-is-friedreichs-ataxia.html
So it is that time of year again let me begin with wishing
you all a...
And for whatever
reason if you don’t do Christmas. (Then this is for you)
I have had a cracker of a year in 2014 with awesome gigs, my
talks and other things taking off, Download Festival and Wheelchair Rugby.
It’s beena year full
of positives and only a few negatives , butting heads with doctors and FA
kicking in hard for a few months but hey that’s always going to happen after
all I do have a progressive illness.
But hey
It’s CHRISTMAS
And it’s going to be a quiet Christmas for me as I am ill
and slowly losing my voice.
Whatever you get up to this time of year be Safe, have Fun
and tell people that you Love them.
I’m looking forward to another great year in 2015 already
got very cool and exciting stuff in the pipe line,
of course I will continue to blog it all in 2015.
Yes! It's been a great year! Thanks to Everyone for being a
part of it
And if you ever get a chance to see them live then do that
too, I took a friend on Saturday night and after he said to me “wow they were a
lot better than what I thought they would be... he enjoyed it.
The only problem was it was an outdoors stage, and it was so
cold Saturday night down here in Bournemouth, safe to say I was Jean Claude Van
Damme cold (https://www.youtube.com/watch?v=j_N4l0s7qU0) so hopped on a bus and headed for my favourite drinking place in
Bournemouth The Anvil (http://www.theanvilbournemouth.co.uk/) had few drinks with Awesome friends and even made it home
in time for the last #UFC of the year.
Just like Charlie Sheen Saturday night I was #Winning.
Sunday night I went to see Deaf Havana at the O2 Academy
here in Bournemouth, with my bud Chris. It was such a good show I forgot the support
bands names but they were really good too, it got a little sad when Deaf Havana
hit the stage and they were telling us stories of how they can’t afford to pay
their phone bill and how a few months back they were thinking of calling it a
day. I for one am so glad they didn’t and I’m a proud to say that Deaf Havana
will go down as the last band I saw live in 2014.
Now as disabled person I think a should add this in, I had to
use the toilet last night at the O2 Academy (first time ever I should add) and
they use a radar key which I do own I just left it at home (it’s such a big F’ing
key you need a Mr. T chain, to carry the thin haha)
(told you it's bloody huge)
so anyway spoke to a member
of staff and after a few minutes she found me a key, I got in the toilet and
holy shit I think it use to be used as the cleaners cupboard probably the
smallest disabled toilet I’ve been in, as you all know I have custom made wheelchair
so It’s not that wide, some people have bigger and wider wheelchairs than me
they must struggle in there. Even Chris text me saying “How big is this pee? Haha
So O2 Academy Bournemouth if you are reading this you need a
bigger disabled toilet.
But still the gig and my weekend was All the Fun :-)