Today I had a letter in the post; it was a review letter
from my last Hospital appointment. It’s
a 4page recap and some of it is fine and helpful and then other parts are like
WHAT the bloody hell, did they even listen to me in that room. I swear sometimes
I just want to tell doctors to back the fuck off and just leave me, let’s face
it I’m a ticking time bomb we all know FA will be the death of me one day so what’s
the point of doing this dance to try and prevent it. (but I don’t because I am
better than that and I have my mum with me at all my appointments and no mother
wants to hear that coming from their sons mouth) Sometimes I do really want too
it’s the truth and sometimes the truth hurts.
I don’t want to sound like an ungrateful brat because I am
so grateful for what they have done for me, and I know they are only trying to
do is best for me. It’s just hard sometimes because it’s ME not them living
with this disease, and the just don’t understand. I guess it really is a love/hate
relationship with doctors.
Rant Over.
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